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Patient & parent summary of research project on surgical treatment for congenital EOS

Published: May 16, 2018

Review the research project here:

Surgical treatment for congenital EOS


Check out our most recent patient story!

Published: May 14, 2018

 

Saunders, 11, and her Mother share their experience about receiving a diagnosis of EOS and what it was like to be treated with bracing, traditional growing rods and most recently magnetic growing rods.


ICEOS 2017 Behrooz Akbarnia Award Recipient

Published: May 1, 2018

The ICEOS 2017 Behrooz Akbarnia Award was granted to the team from Texas Scottish Rite Hospital for Children, Dallas, Texas: Daniel Boutin, Lori Karol, Kiley Poppino and Charles Johnston. Their paper was entitled: “Continued deterioration in pulmonary function at minimum 18-year follow-up from early thoracic fusion in non-neuromuscular scoliosis.”

This project was a long-term follow-up to the team's previous study examining the effect of early thoracic fusion on pulmonary outcomes in patients who were a minimum of 5 years postoperative. The current study documented continued pulmonary decline as these patient are entering adulthood.

The results of this project document the need to optimize pulmonary outcomes with current surgical treatment for spine deformity, as well as  improved techniques that encourage greater pulmonary system development during pediatric growth.


View the most recent video in EOS

Published: April 17, 2018

Growth Friendly Techniques for Early Onset Scoliosis (EOS): Is Quality of Life the Cost for a Taller, Straighter Spine?

Visit this page to view the video: growingspine.org/family-resources/educational-videos


2016 Behrooz Akbarnia Award Recipient

Published: May 9, 2017

2016 Behrooz Akbarnia Award recipient Dr. Amanda Whittaker. Read the press release here.


Frequently Asked Questions of EOS

Published: June 27, 2016

Please see our updated FAQ with more information on the different areas of EOS!

Para preguntas frecuentes con respecto a escoliosis de inicio temprano, por favor haga clic aquí.


GSF Benefit Concert Planned in Ann Arbor, Michigan

Published: April 20, 2016

Please find the details for the GSF benefit Concert to be held in Ann Arbor, Michigan at the following link.

For those who are looking to donate to the "A Little Turtle in a Big Shell: Hana's Journey with Early Onset Scoliosis" benefit concert, please follow the link to the donor form. Instructions for submitting are located on the bottom of the donation form.


GSF Releases Patient Whiteboard Video on EOS

Published: April 19, 2016

GSF Founder, Dr. Behrooz Akbarnia, featured in Becker's Spine Review

Published: April 4, 2016

ICEOS: Save the dates for 2016 & 2017

Published: January 21, 2016


8 out of 10 "Best Hospitals for Pediatric Orthopedics" are GSSG sites!

Published: June 17, 2015

U.S. News and World Report "Best Hospitals for Pediatric Orthopedics"

Eight (8) GSSG centers have been named to the prestigious Honor Roll of the U.S. News & World Report 2015-16 Best Hospitals for Pediatric Orthopedics, ranking among the top 10 pediatric hospitals in the nation. The Honor Roll features the “best of the best” in the country.

Congratulations

  • Children's Hospital of Philadelphia
  • Rady Children's Hospital San Diego
  • Boston Children's Hospital
  • Cincinnati Children's Hospital Medical Center
  • Nemours Alfred I. duPont Hospital for Children
  • Children's Medical Center Dallas - Texas Scottish Rite Hospital for Children
  • Rainbow Babies and Children's Hospital
  • Children's Hospital Los Angeles

View all GSSG centers


Support ICEOS 2015

Published: May 8, 2015

Support GSF by shopping with AmazonSmile!

Published: January 8, 2015

Do you shop on Amazon?  Did you know you can support GSF when you purchase with AmazonSmile?

Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases to the Growing Spine Foundation whenever you shop on AmazonSmile. AmazonSmile has the same products, same prices, and same service as the traditional Amazon site.

Choose GSF as your AmazonSmile charity at http://smile.amazon.com/ch/26-2957409

Click here to learn more about the AmazonSmile program.  Thank you for your support!

 


GSF President Behrooz Akbarnia and GSSG Member Suken Shah Featured in Deleware Online Article

Published: August 26, 2014

GSF President Behrooz A. Akbarnia, MD and GSSG member Suken A. Shah, MD were recently featured in an article on the first magnetic growing rod procedure at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delware. 

Dr. Shah performed the procedure on Wednesday, August 20th on Bradley Scout, age 7.

Click here to read the article.


GSF Exceeds Fundraising Goal of $1 Million!

Published: February 4, 2014

The Growing Spine Foundation is proud to announce that the 2013 fundraising goal of $1 Million dollars has been met! As of December 30, 2013, $1,030,597 has been raised for GSF Endowment Funds. All members of the GSF leadership contributed to the campaign, along with many members, friends, and corporate supporters.

GSF continues to encourage donations, and can now accept online credit card contributions.


Growing Spine Study Group Papers Presented at the IMAST and SRS Annual Meeting

Published: October 16, 2013

The following GSSG Papers and Posters were presented recently:

SRS Podium

Traditional Growing Rods Versus Magnetically Controlled Growing Rods in Early Onset Scoliosis: A Case-Matched Two Year Study
Behrooz A. Akbarnia, Kenneth Cheung, Gokhan Demirkiran, Hazem Elsebaie, John Emans, Charlie Johnston, Greg Mundis, Hilali Noordeen, Jeff Pawelek, Matthew Shaw, David Skaggs, Paul Sponseller, George Thompson, Muharrem Yazici, Growing Spine Study Group

Early onset scoliosis treated with Growing Rods has a greater increase in T1-S1 length, better Cobb correction, and more than twice the number of surgeries compared to Shilla
David L. Skaggs, Lindsay M. Andras,  Elizabeth R. A. Joiner, Richard E. McCarthy, Scott J. Luhmann, Paul D. Sponseller, John B. Emans, Growing Spine Study Group

SRS Poster

Does distraction based treatment predict thoracic dimensions?
Michael Glotzbecker, John Emans, Meryl Gold, Behrooz Akbarnia, Charles Johnston, Suken Shah, Francisco Sanchez Perez-Grueso, Growing Spine Study Group

IMAST Podium

Five to Sixteen-Year Results of 201 GR Patients: Is There a Difference Between Etiologies?
Behrooz Akbarnia, Nima Kabirian, Jeff Pawelek, John Emans, George Thompson, David Skaggs, Paul Sponseller, Growing Spine Study Group

Proximal Rib Anchors Have 77% Less Risk of Rod Breakage Than Proximal Spine Anchors In Distraction-Based Growing Rods
Paul Sponseller, Kent Yamaguchi, David Skaggs, Shaun Mansour, Karen Myung, Muharram Yazici, Charles Johnston, George Thompson, Behrooz Akbarnia, Michael Vitale, Growing Spine Study Group

Congratulations to all presenters and authors!


Congratulations to Dr. George Thompson!

Published: October 16, 2013

GSF Board and GSSG Executive Committee member George H. Thompson, MD received the Scoliosis Research Society’s Lifetime Achievement Award at the 48th Annual Meeting in Lyon, France.

Dr. Thompson is currently a Professor of Orthopaedic Surgery and Pediatrics at Case Western Reserve University in Cleveland, Ohio and the Director of Pediatric Orthopaedics at Rainbow Babies and Children’s Hospital, University Hospitals Case Medical Center.


Growing Spine Study Group Papers Presented at POSNA Meeting

Published: May 14, 2013

The following Growing Spine Study Group papers were presented at the Pediatric Orthopaedic Society of North America (POSNA) Meeting in Toronto in early May:

1. Five to Sixteen-Year Results of 201 Growing Rod Patients: Is There a Difference Between Etiologies? – Behrooz Akbarnia, MD

2. Early Onset Scoliosis Treat with Growing Rods has more Spinal Growth, Better Cobb correction, but more than twice the number of surgeries compared to Shilla. – Lindsay Andras, MD  and David Skaggs, MD

3. Are Rib Anchors Protective Against Rod Breakage in Distraction-Based Growing Rods? – David Skaggs, MD


GSF Founder and President Performs Ground Breaking New Treatment for Early Onset Scoliosis

Published: May 14, 2013

In a revolutionary treatment for early-onset scoliosis (EOS), a team of surgeons implanted adjustable growing rods in two children from California. The pioneering surgeries — the first ever in the United States — were performed on May 7th at Rady Children’s Hospital in San Diego. The Food and Drug Administration (FDA) granted Compassionate Use approval to use the MAGEC™ (MAGnetic Expansion Control) System, developed by Ellipse Technologies, Inc., for these two patients.

Dr. Behrooz A. Akbarnia, a world-renowned pioneer in advanced treatments for scoliosis in young children, led the surgeries. Dr. Akbarnia is Medical Director of the San Diego Center for Spinal Disorders and Clinical Professor in the Department of Orthopaedic Surgery at University of California, San Diego and the President of the Growing Spine Foundation. Orthopedic surgeons Dr. Burt Yaszay and Dr. Gregory Mundis, who are also members of the early-onset scoliosis program at Rady Children’s Hospital and the Growing Spine Study Group, participated in the procedures.

Click here for more information about this ground break surgery.